Selfhood in younger onset dementia: Transitions and testimonies

Selfhood in younger onset dementia: transitions and testimonies.

Younger people with dementia and their carers are an overlooked population for research, policy and practice attention. In this study, data were collected from both the United States and the UK in order to explore the meaning and construction of selfhood and identity. The US data collection included in-depth interviews with 23 people diagnosed with younger-onset dementia, while the UK data coll...

YOUNGER-ONSET DEMENTIA An introduction to younger-onset dementia syndromes

With advances in nutrition and medicine, longer life expectancies are accompanied by an increase in the number of people affected with dementia. Contrary to common perceptions, dementia is not a single disorder, but rather is an umbrella term used to refer to a number of different clinical presentations, each of which is associated with well-defined changes in the brain. While dementia is typic...

Younger Onset Dementia: A Literature Review

The emotional well-being of young people having a parent with younger onset dementia.

Younger onset dementia (YOD) not only affects the person with the diagnosis but the whole family, which often includes young people. A limited body of research on this group of young people indicates that they experience varying degrees of emotional trauma. We explored the lived experiences of young people having a parent with YOD from the perspective of the social model of disability. Data wer...

Sense of identity in advanced Alzheimer's dementia: a cognitive dissociation between sameness and selfhood?

We looked at whether sense of identity persists in patients with Alzheimer's disease (AD) and if its profile remains the same between two examinations. A specifically designed protocol was administered to 16 AD patients in the mild to severe stages of dementia and to 16 matched healthy controls, both living in the same institution. We showed that sense of identity was broadly preserved in AD pa...